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Get involved with research

We want to make it as simple as possible for our patients, services users and carers to get involved in research.

Research helps to provide a better understanding of conditions and you can participate in research in lots of different ways.

We have identified some research opportunities from People in Research below.

If you would like to see all of the opportunities from People in Research please click here.

Management of non-metastatic prostate cancer: systematic review of randomised controlled trials and network meta-analysis

Researchers from University College London would appreciate views from someone who are currently being monitored or treated for non-metastatic prostate cancer (cancer that has not spread to other parts of their body) on a grant application. The grant will collect and analyse important clinical trials on prostate cancer in a way that has not been analysed before. If awarded, we will pay approximately £50 per month over 18 months for providing their views. All participation will be online. Thanks.

4th June 2020 to 4th July 2020

Click here to find out more 

Putting Good into Practice

Calling members of PPI groups to help design the materials for a public dialogue on uses of health & social care data. You will be paid £50 to attend 2 sessions (1 hour each) on Zoom. Your views will support the development of policy advice from the National Data Guardian (NDG) on data uses for planning and research. The sessions run at various times on 22nd, 25th, 29th June or 2nd July. The programme is being run by HVM in collaboration with NDG and Understanding Patient Data.

3rd June 2020 to 28th June 2020

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A randomised controlled trial of compression therapies for the treatment of venous leg ulcers

We are looking for people who have either had or who have cared for a person with a venous leg ulcer, to input to the management of our research study.

You do not need any previous experience, just a willingness to attend occasional meetings. This should not take more than 2 hours at any given time, and we will work with you to support you in attending these meetings.

You may also be invited to review project documentation and processes as the study progresses.

13th May 2020 to 31st December 2020

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CLIMB – National Health Data Consent Survey

This study is an online anonymous survey of public opinion on the ways in which national health service data should be shared between health providers or restricted.

21st May 2020 to 31st July 2020

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Get Involved in a research about MRI and Gait Analysis in CMT

The study will seek to explore how people with dHMN (a type of CMT 2) walk and how physical therapy can help. We aim to investigate this through a series of clinical examinations and rehabilitation treatments, for example, ankle braces and exercises.

If you are living with any type of CMT, you are invited to review the participants' information sheet for this research.
You do not need any previous experience, just the willingness to give your perspective as someone with experience of CMT.

27th May 2020 to 27th July 2020

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Reviewing opportunity – pain relief strategies for dressing change in chronic wounds

We are looking for a member of the public to review a proposal from a patient perspective, looking at pain relief strategies for dressing change in chronic wounds (such as leg ulcers or other). The review is completed through our online system and will involve reading a paper focusing on the plain English summary and PPI sections. It is available to review now and would ideally be completed by Friday 12 June. If you are interested, please send details of your experience as soon as possible.

28th May 2020 to 12th June 2020

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Genetic Testing and Cancer

Help us understand attitudes towards mainstream genetic testing in cancer to evaluate the experiences and impact on patients and their families. By helping us understand your views and experiences as people affected by cancer, you will help us better understand needs and tailor support for those offered genetic testing in future.

2nd June 2020 to 22nd June 2020

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Survey for ulceration, gangrene, peripheral vascular disease & other foot conditions

We have been approached by a company that is developing a new product for wound care management. They would like to get more insights from the patients on the features that are important and usability of the technology.

2nd June 2020 to 2nd July 2020

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Researcher Volunteer for ‘Quit Sense’ quit smoking study

Patient and Public Involvement (PPI) is when members of the public are actively involved in research projects. As a PPI volunteer for Quit Sense you'll work alongside researchers to help shape a study that investigates a newly developed smartphone app intended to help cigarette smokers to quit and stay quit. Please refer to the PPI volunteer role document for details on the role and the experience needed.

8th June 2020 to 10th July 2020

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Scaffold technology for early intervention of cartilage defects in joints

We have developed novel scaffold technology for early repair and regeneration of articular cartilage damages, it has potential to delay the use of total joint replacement. This technology has progressed to the clinical trial. We wish relevant patients could be involved in our research and develop better treatment option for patients with cartilage damages.

30th April 2020 to 30th December 2021

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Reviewing Opportunity – Treatment for Appendicitis in Children without surgery

We are looking for a member of the public to review a research proposal looking at treatment of appendicitis in children: A young person or a parent of a child who has had appendicitis treated without surgery.

The review is completed through our online system. It involves reading a paper focusing on the plain English summary and PPI sections. It would be available to review from 14 May and would ideally be completed by 1 June . If you are interested, please send details of your experience.

4th May 2020 to 14th June 2020

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Face mask use and social distancing in the UK during COVID-19

The goal of this study is to gather information about the knowledge and beliefs the British public have in regards to using face masks and implementing social distancing measures, as well as the impacts these measures have had on their daily lives.

Findings from this survey (about 10 min) will contribute to the knowledge regarding current public health interventions and to help develop more effective programmes in the case of future outbreaks.

https://oxford.onlinesurveys.ac.uk/covid19-uk 

30th April 2020 to 30th July 2020

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The main part of this study is exploring the contexts that influence the usage of data within NHS primary care commissioning. I will conduct interviews with NHS commissioners, including laypeople who provide Patient and Public Involvement (PPI) for the NHS primary commissioning cycle.
Prior to interviewing this particular group of commissioners, we would like to speak to people who have experience of providing PPI for the NHS primary care commissioning cycle to test some of the questions.

8th May 2020 to 8th October 2020

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We are undertaking a review and a survey of pain relieving strategies for dressing change of chronic wounds in the UK. We would like people living with chronic wounds requiring frequent dressing changes that can be painful to help us with our research. We would like you to be involved in our project meetings and to help us identify the most relevant outcomes for our review and to ask the right questions in our survey. We will reimburse you for any expenses incurred.

8th April 2020 to 8th April 2021

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Barts Cancer Institute is designing a research project on pancreatic cancer, which aims to evaluate risk factors of pancreatic cancer in a multi-ethnic population. The project plans to use medical histories of patients, collected from their electronic health records (EHR). The team want to gather patient and public opinion on this research and its use of EHR.

To be involved, please download (or contact d.ullah@qmul.ac.uk) the research summary, complete the survey and email.

14th April 2020 to 14th June 2020

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Kings College London are investigating why physiotherapy rehabilitation after hip fracture varies nationally and the impact that this can have on patients.If you, or someone you know, have received physiotherapy after hip fracture surgery whilst in hospital this opportunity may be for you. You would help us by providing advice on study materials and the results.

23rd March 2020 to 23rd July 2020

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Reviewing Opportunity for Health and Care Research Wales - Health and Care Research Wales

We are starting to recruit for public reviewers for our Research for Patient and Public Benefit (RfPPB), Social Care Research Grant and Health Research Fellowship Awards call,  which are open now.

If you would like to be considered for this opportunity or would like more information, please email us : Wales@soton.ac.uk

17th October 2019 to 23rd December 2020

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NIHR London In Vitro Diagnostics Co-operative - Join our Lay Advisory Group

Are you interested in health research involving the design, utility and cost-effectiveness of new diagnostic tests in the NHS? We have an exciting opportunity to become a member of our Lay Advisory Group. We are looking for members who could provide critical and constructive feedback to join us. You will be an active member of our Advisory Group and bring your experience as patient/carer representing patient voice in our decision-making process.

2nd October 2019 to 14th November 2020

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HealthLumen - Lay members required for communicating personalised risk of disease

The link between health behaviour and chronic disease is well established, however translating risk of disease based on unhealthy behaviours is difficult at an individual level.

We’re looking for a lay members to input into the development and design of the predictive tool. The tool will predict a person’s likelihood of disease based on their unhealthy behaviours. This will be integrated within GP systems and provide visuals as a way of better communicating disease risk e.g. red for high risk.

22nd August 2019 to 30th October 2020

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Public Health England - Fetal and neonatal varicella surveillance study proposal

We are proposing a surveillance study to identify cases of neonatal chickenpox contracted during pregnancy or in the first month of life. This information is important for guiding discussions regarding introduction of a chickenpox vaccine.

The proposed study would be run through the British Paediatric Surveillance Unit.

We are seeking input regarding our study materials to ensure they are written in a clear understandable way. This can be done via email/teleconference.

28th August 2019 to 28th July 2020

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Leeds Institute of Health Sciences, University of Leeds - Measuring quality of life for patients with cataracts and age-related macular degeneration

We are looking for people with experience of cataract surgery or age-related macular degeneration (ARMD) to help us with a research project on how to measure the impact of vision on quality of life with cataracts and ARMD.

No previous research experience is needed. You would help us understand the patient perspective and look at the quality of life issues that matter most to people with cataracts/ARMD.

You would attend meetings, either in person or via phone, and review project documents.

12th September 2019 to 1st November 2020

Click here to find out more

Integrate ENT - Nose Bleed Treatment Research

They are looking for people who have a personal experience or understanding of current nose bleed treatments in the UK. They are setting up a study to look at different treatment methods for nosebleeds that do not stop on their own.

You will be required to provide your input throughout the study with focus groups but also opinions on study materials and literature.

Requirements

They would be interested in anyone who has experienced having their nose ‘packed’, or have been involved and understand the process.

Payment and Expenses

Payment will be made depending on the role, and expenses will be paid.

Closing date: 15 July 2020

Click here to find out more.

UK Based Public Advisory Group for the Global Surgery Unit

What does the study involve?

The Global Surgery Unit is looking for individuals from Mexico, Ghana, Nigeria, Rwanda, Zambia, Benin, South Africa, India, The Philippines and Egypt to join a UK-based Advisory Group.

Requirements

- You must be from Mexico, Ghana, Nigeria, Rwanda, Zambia, Benin, South Africa, India, The Philippines or Egypt.

- You must have an interest in surgical care and knowledge of the healthcare system in one of the above mentioned countries is essential.

- Good written and spoken English.

- Good communication skills.

- Excellent team working skills.

- Ability to follow instructions and work autonomously.

Payment and Expenses

Payment and expenses will be made in line with INVOLVE guidelines.

Closing date: 15 August 2020

Click here to find out more

Review for the Efficacy and Mechanism Evaluation (EME) Programme

This study is for people who have a liver transplant to review an application for funding.

The study is particularly interested in assessing the benefits of a home-based exercise programme before and after liver transplant.

Requirements

You must have had a liver transplant.

Payment and Expenses

Payment of £125 will be made.

Closing date: 25 August 2020

Click here to find out more.