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Get involved with research

We want to make it as simple as possible for our patients, services users and carers to get involved in research.

Research helps to provide a better understanding of conditions and you can participate in research in lots of different ways.

We have identified some research opportunities from People in Research below.

If you would like to see all of the opportunities from People in Research please click here.

Survey – Help us develop a new clinical trial for lung cancer that is patient friendly - Cancer Research UK

Despite the advances in treatment for non-small cell lung cancer (NSCLC), some patients won’t respond to the current standard treatment available. We are interested in hearing your thoughts on how we want to go about proving this. We are starting by asking some questions that we hope will help us to develop a workable trial that is as patient-friendly as possible.

10th October 2019 to 19th October 2019

Click here to find out more

Pain relieving strategies for people with chronic wounds at dressing change - University of Sheffield 

We are undertaking a review and a survey of pain relieving strategies for dressing change of chronic wounds in the UK. We would like people living with chronic wounds requiring frequent dressing changes that can be painful to help us with our research. We would like you to be involved in our project meetings and to help us identify the most relevant outcomes for our review and to ask the right questions in our survey. We will reimburse you for any expenses incurred.

10th October 2019 to 31st December 2019

Click here to find out more

Priority Setting Partnership in Surgical Treatment for Skin Cancer - UK Dermatology Clinical Trials Network 

A PSP is a research project which follows a protocol set by the James Lind Alliance with the aim of identifying the top ten uncertainties or research priorities in a particular area of medicine (in this case – skin cancer surgery). This will involve attending three face to face meetings in London over an 18 month period/teleconference discussion. We would like to hear from anyone who has experience of skin cancer surgery (or their carers) who would like to contribute to this work.

10th October 2019 to 20th November 2019

Click here to find out more

TRaDiP study at the University of Surrey - Patient and Public Voice Expert Advisors needed for research project advisory board

The TRaDiP study is assessing the impact of prescribing by therapeutic radiographers and dietitians. Our project advisory board meets every six months (usually dialling in remotely) to review the project progress and provide guidance. We want to recruit two additional PPV expert advisors to provide critical feedback and represent the views of patients and carers. The advisors should have experience of healthcare, previously held PPI/PPV roles and have enthusiasm and willingness to challenge.

3rd October 2019 to 30th October 2019

Click here to find out more

NIHR London In Vitro Diagnostics Co-operative - Join our Lay Advisory Group

Are you interested in health research involving the design, utility and cost-effectiveness of new diagnostic tests in the NHS? We have an exciting opportunity to become a member of our Lay Advisory Group. We are looking for members who could provide critical and constructive feedback to join us. You will be an active member of our Advisory Group and bring your experience as patient/carer representing patient voice in our decision-making process.

2nd October 2019 to 14th November 2020

Click here to find out more

Royal College of Occupational Therapist - Help to set the research agenda for occupational therapy

If you have experience of occupational therapy then please share your thoughts with us. We are working to set the research agenda for the profession by identifying what is important to people who access occupational therapy services, their carers or family and occupational therapists.

We are asking for five to ten minutes of your time to fill in a survey questionnaire. It is available online here.

Survey closes on 5 November 2019.

University of Aberdeen - Strategies to improve dental health care

We are looking at how to design strategies to support dental health professionals to: provide evidence-based care, reduce unnecessary variation in care and improve care and outcomes for dental patients. We want to include members of the public to share their perspectives. No special skills or experience needed – just interest and enthusiasm, a bit of spare time and willingness to speak up. Activities likely to include meetings (either by telephone or in person) and reviewing project documents.

24th September 2019 to 31st December 2019

Click here to find out more

HealthLumen - Mothers and those who smoke needed to help on intervention study about smoking in pregnancy

We are interested in exploring the long-term impact on mothers and infants of smoking cessation interventions in pregnancy using a computer model.

We’re looking for advice/insights/input from mothers who used to smoke, or who smoked during pregnancy (or who currently are), or who smoked after pregnancy, or know someone who did, to advise on the design and communication of the study.

22nd August 2019 to 22nd October 2019

Click here to find out more

HealthLumen - Lay members required for communicating personalised risk of disease

The link between health behaviour and chronic disease is well established, however translating risk of disease based on unhealthy behaviours is difficult at an individual level.

We’re looking for a lay members to input into the development and design of the predictive tool. The tool will predict a person’s likelihood of disease based on their unhealthy behaviours. This will be integrated within GP systems and provide visuals as a way of better communicating disease risk e.g. red for high risk.

22nd August 2019 to 30th October 2020

Click here to find out more

Public Health England - Fetal and neonatal varicella surveillance study proposal

We are proposing a surveillance study to identify cases of neonatal chickenpox contracted during pregnancy or in the first month of life. This information is important for guiding discussions regarding introduction of a chickenpox vaccine.

The proposed study would be run through the British Paediatric Surveillance Unit.

We are seeking input regarding our study materials to ensure they are written in a clear understandable way. This can be done via email/teleconference.

28th August 2019 to 28th July 2020

Click here to find out more

Cancer Research UK - Share your idea – What are the biggest challenges in cancer research?

Have your say in Cancer Research UK’s biggest research initiative, Grand Challenge.
Tell us what you think the greatest barriers to progress are.
Problems that if solved, could significantly benefit patients.

12th September 2019 to 30th October 2019

Click here to find out more

Leeds Institute of Health Sciences, University of Leeds - Measuring quality of life for patients with cataracts and age-related macular degeneration

We are looking for people with experience of cataract surgery or age-related macular degeneration (ARMD) to help us with a research project on how to measure the impact of vision on quality of life with cataracts and ARMD.

No previous research experience is needed. You would help us understand the patient perspective and look at the quality of life issues that matter most to people with cataracts/ARMD.

You would attend meetings, either in person or via phone, and review project documents.

12th September 2019 to 1st November 2020

Click here to find out more

Clayson Linguistic Validation Services Ltd - Bladder Cancer Survey Review

We are looking for five people with bladder cancer to help us review a patient questionnaire to ensure that the wording is clear and easy to understand. Interviews will take 15 minutes and participants will be paid £50 for their time. Participants must be native speakers of UK English and over 18.

16th September 2019 to 16th October 2019

Click here to find out more

University of Liverpool - Effectiveness of music therapy after a stroke

The University of Liverpool is searching for patients with stroke to give feedback on the effect and use of music during their recovery/rehabilitation, in the form of a questionnaire. The questionnaire will take less than 10 minutes to complete.


You must have had a stroke.

You must have an opinion on the effect of music during your recovery/rehabilitation.

Please click here to complete the survey

Closing date: 1 January 2020

Impact of the Soft Drink Levy - University of Cambridge

You will be asked to take part in three telephone interviews, (never less than six months apart), with each interview lasting approximately 30 minutes. You will provide insights on:

• Your perspective on the tax and its potential impacts on health
• Your thoughts on why the tax might influence soft drink purchases


Must be 18 years or older

Must drink soft drinks

Must have an opinion on the soft drink levy

Closing date: 1 March 2020

Click here to find out more.

Integrate ENT - Nose Bleed Treatment Research

They are looking for people who have a personal experience or understanding of current nose bleed treatments in the UK. They are setting up a study to look at different treatment methods for nosebleeds that do not stop on their own.

You will be required to provide your input throughout the study with focus groups but also opinions on study materials and literature.


They would be interested in anyone who has experienced having their nose ‘packed’, or have been involved and understand the process.

Payment and Expenses

Payment will be made depending on the role, and expenses will be paid.

Closing date: 15 July 2020

Click here to find out more.

UK Based Public Advisory Group for the Global Surgery Unit

What does the study involve?

The Global Surgery Unit is looking for individuals from Mexico, Ghana, Nigeria, Rwanda, Zambia, Benin, South Africa, India, The Philippines and Egypt to join a UK-based Advisory Group.


- You must be from Mexico, Ghana, Nigeria, Rwanda, Zambia, Benin, South Africa, India, The Philippines or Egypt.

- You must have an interest in surgical care and knowledge of the healthcare system in one of the above mentioned countries is essential.

- Good written and spoken English.

- Good communication skills.

- Excellent team working skills.

- Ability to follow instructions and work autonomously.

Payment and Expenses

Payment and expenses will be made in line with INVOLVE guidelines.

Closing date: 15 August 2020

Click here to find out more

Review for the Efficacy and Mechanism Evaluation (EME) Programme

This study is for people who have a liver transplant to review an application for funding.

The study is particularly interested in assessing the benefits of a home-based exercise programme before and after liver transplant.


You must have had a liver transplant.

Payment and Expenses

Payment of £125 will be made.

Closing date: 25 August 2020

Click here to find out more.